Christina Olivarria, a project manager and hemophilia caregiver, smiles while at a park

Christina

Project Manager
Hemophilia caregiver

 “As a parent, we're the examples that we set for our children. If you want your kids to try new things or step out of their comfort zone, you have to set that example for them. We have one shot in this life; why not make the most out of each and every day?”

Ivan Giron, a ophthalmic technician with hemophilia, stands in the driveway of his home

Ivan

Ophthalmic Technician
Living with hemophilia

“My daughter also has hemophilia and I wanted to make sure that I was prepared to help her as much as I could. I wanted to make sure that I got as much knowledge as I could, so when she has her children, we can be ready and they won't have to go through the same things I went through as a kid.”

John Faria, a software engineer with hemophilia, stands in front of the door of his home

John

Software Engineer
Living with hemophilia

“I think mentoring is really important. I call people in the community ‘blood brothers’ and ‘blood sisters.’ We’re connected and can all learn a lot from each other; not just about living with hemophilia, but about love and dealing with the challenges of life.”

Mike Hargett, a professional chef with hemophilia, stands outside in front of a sliding glass door

Mike

Professional Chef
Living with hemophilia

“Find the strength, get support, get immersed within the community and talk to people who have been there – you can't do that if you're in the mindset that you're somehow not worth the same thing as the person next to you.” 

Myles Ganley, a bleeding disorders advocate with hemophilia, stands in front a window with a city skyline

Myles

Bleeding Disorders Advocate
Living with hemophilia

“You're never too young to start thinking about what you want to do. Not what makes the most money or what will make your parents happy – but actually figuring out what you want to do. You can do things that you want to do and make it work.”